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“If you are someone [who’s] looking after someone with dementia, you know how difficult and stressful it can be to get someone out into the world and just to navigate them safely,” she said.
“Even just to get a cup of coffee. I’m just seeing headlines and there’s a video of my husband out getting some coffee with some friends [who] did a stand-up job protecting him.”
Emma Heming Willis shared this photo of her husband when she announced he had been diagnosed with frontotemporal dementia.Credit:Instagram
After a break when it became too emotional to speak, she said it was clear there still needed to be a lot of education about dementia.
The post was accompanied by a call to caregivers or dementia care specialist for “any tips or advice on how to get your loved ones out in the world safely”.
Emma Heming Willis has called on paparazzi to “keep your space” from her husband.Credit:Instagram
Three weeks ago, the Willis family said challenges with communication were just one symptom of the disease he faced.
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According to the Association of Frontotemporal Degeneration, there is no cure or treatment that can prevent the disease’s onset, with the average life expectancy seven to 13 years after the start of symptoms.
Willis, 67, became one of Hollywood biggest action heroes with Die Hard in 1988 and Die Hard 2 in 1990.
He has made more than 100 movies including 12 Monkeys, The Fifth Element, Armageddon, The Sixth Sense, The Whole Nine Yards, Unbreakable, Sin City, Red, Moonrise Kingdom, Looper and three more Die Hard instalments.
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Email Garry Maddox at gmaddox@smh.com.au and follow him on Twitter at @gmaddox.